28 February 2017 marks the 10th international Rare Disease Day coordinated by EURORDI. This year the theme is Research.
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
The Rare Disease Day 2017 theme is research. Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care. Rare Disease Day 2017 is therefore an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.
With the slogan ‘With research, possibilities are limitless’, on and around this day hundreds of patient organisations from countries and regions all over the world held awareness-raising activities based on the theme of research.